New york science journal 2014;7(1)

By ss al-rafay — practices of caregivers of children with xeroderma pigmentosum. ... recessive inheritance, males and females are similarly affected.
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New York Science Journal 2014;7(1) http://www.sciencepub.net/newyork133Effect of Health Educational Program on Improving Knowledge and Practices of Caregivers of Childrenwith Xeroderma PigmentosumSafy S. Al-Rafay1 and Sahar A. Shafik21PhD, Assistant Professor, Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University2PhD, Assistant Professor, Department of Community Health Nursing, Helwan [email protected]: Background. Xeroderma pigmentosum (XP) is a rare autosomal recessive hereditary disease characterizedby hyperphotosensitivity. Aim. This study aims to evaluate the effect of a health educational program on improvingknowledge and practices of caregivers of children with xeroderma pigmentosum. Subjects and Methods. A quasi-experimental design with pre/post intervention assessments is utilized in this study with a purposive sample of 50caregivers from 21 families of 30 children with a diagnosis of XP from the Pediatric Dermatology and Oncologyoutpat...
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